Welcome
Welcome to plantarfibroma

You are currently viewing our boards as a guest, which gives you limited access to view most discussions and access our other features. By joining our free community, you will have access to post topics, communicate privately with other members (PM), respond to polls, upload content, and access many other special features. In addition, registered members also see less advertisements. Registration is fast, simple, and absolutely free, so please, join our community today!

Hello I'm Deb

Post here to introduce yourself to everyone, maybe give some background and how you came to know Plantar Fibromatosis.

Hello I'm Deb

Postby debbikay » Wed Jul 11, 2012 3:48 am

Hi I am Deb, I live in Northern California. I have been recently diagnosed with Ledderhose's disease. About twelve years ago I noticed small lumps in my arches but they didn't hurt so I didn't think much about it. At the time I was a runner and was running five miles a day so I figured it was just something runners must get. They were small and they didn't bother me at all. I honestly forgot about the lumps for the last ten years or so. In the last few months I have developed heal spurs and the lumps have suddenly begun to grow much larger. My feet, especially my right foot is hurting so bad at work all day I can hardly stand it. I work at Wal-Mart in the produce department. I am on my feet walking non stop all day. I went to the podiatrist and first he gave me a cortisone shot in the heal spur to see if it would help the pain. It didn't help. Then he made orthotics for me. I have had the orthotics for two weeks and I can't wear them for more than two hours and then my arches hurt so bad I can't stand it. The podiatrist told me that my feet will never get better as long as I am walking on concrete floors all day at work. Next step will be surgery to remove the heal spurs. The lumps in my left foot are so large that you can see them sticking out but they don't really hurt until I wear the orthotics. The lumps in my right foot are not as big but they hurt when I walk for more than a few minutes and my right arch has been very swollen for over a month. Icing and wrapping and all that have not helped at all. I can't afford to take off work for surgery. I don'r know what I am going to do. Any way that is my story and thank you for allowing me to join this support forum.
User avatar
debbikay
 
Posts: 2
Joined: Fri Jul 06, 2012 5:24 am
Location: California

Re: Hello I'm Deb

Postby debbikay » Wed Jul 11, 2012 4:21 am

P.S. My father has Dupuytren's Contracture but I didn't know that the lumps in my feet were related untill I recently had them diagnosed and then looked it up on the internet. I also have Crohn's Disease and arthritis but my feet are the biggest pain and annoyance at the moment!
User avatar
debbikay
 
Posts: 2
Joined: Fri Jul 06, 2012 5:24 am
Location: California

Re: Hello I'm Deb

Postby Gary1987 » Thu Jul 12, 2012 10:41 am

Hi Deb,

I am sorry to hear about your situation an certainly know that it is not an easy one. As I imagine you have seen from my linked blog http://www.ledderhose.blogspot.co.uk I also have Ledderhose but I live in the UK. A lot of the problem with this thing is jobs, I had a similar problem as I worked in scientific research which involves a lot of time on your feet and I struggled with that and dread to think what it must be like for you, I certainly know that with the pain I was in there is know way I would be able to do the job I used to do in a DIY store over here. Luckily I am moving into IT.

I also had a steroid shot but I had it into the lumps (ouch) and it seemed to help for a little while, at most 6 months but it is often considered by specialists not to be a great options. I would certainly recommend you see someone who knows a lot about this condition before getting surgery done on this condition, the heel spur might be ok but if the pain is coming from the lumps then getting that treated is not going to help. For this condition there are other treatments than surgery but the problem, particularly in the US is that they cost. I also have orthotics and one thing I would say is that although they help the stability of my foot they do not appear to be designed with the fibroma in mide. Have a look at them, they should have a dip in the middle so there is no direct pressure in the location of your lump(s) (normally in the centre of the arch) and they should also be quite cushioning so as to take some of the pounding off of your feet.

Radiotherapy is the option I have gone for, here it costs £2000 which I had paid for by relatives, but I think it is more than that in the US. This treatment does work for most people though and I am already starting to feel the benefits and I have not even finished the full treatment yet and I have interviewed the specialist treating me http://ledderhose.blogspot.co.uk/2012/07/interview-with-richard-shaffer.html. I know another option that I have seen available in the US is cryosurgery where they super cool it and this helps stops the pain http://ledderhose.blogspot.co.uk/2012/07/interview-with-dr-spilken-cryosurgery.html.

I am afraid though that for me the best medicine has been keeping off of it and I am lucky in some ways as although I got it young this has allowed me to change careers before it really matters (I'm 25).

I hope that you find talking to people is a help and hopefully you can find something that works for you.

Gary

I also recommend visiting the Dupuytren's online forum - there are loads of people with this condition there and they are more than willing to help, quite a few in the US as well I think. http://www.dupuytren-online.info/Forum_English/board/ledderhose/index-1.html
Gary1987
Site Admin
 
Posts: 162
Joined: Fri Nov 18, 2011 7:47 am

Re: Hello I'm Deb

Postby Mary Anne » Tue Feb 28, 2017 10:43 pm

Hi Deb,
I know that it has been a long time since you wrote on this forum. I found it because I am trying to find if there is a link between Plantar Fibroma and Crohn's. I also live in Northern California. I am in the San Francisco Bay Area.
I have been recently diagnosed with Plantar Fibroma. I also have Crohn's and am very interested in your experience. I have been having Remicade infusions for about 6 years. The Remicade has helped put my Crohn's in to remission. However, as a side effect I have psoriasis on my hands and feet along with arthritis in my fingers. Now I have this lump in the arch of my left foot. I am very suspicious that it is connected with either my Crohn's or the Remicade. Are you also on Remicade? or perhaps sulfasalazine or prednisone?
Mary Anne
Mary Anne
 
Posts: 1
Joined: Tue Feb 28, 2017 10:32 pm


Return to Introduce yourself

Who is online

Users browsing this forum: No registered users and 1 guest

cron
suspicion-preferred